Tag: surgery

Delinquency

i am now eighteen days past surgery and i cannot stop sleeping.  Well, i can, for very short spurts, long enough to take the dog out for a walk or to feed myself, but otherwise, i am back in bed with speed.

Thankfully, i have been writing, but there will be some substantial editing to do when i type these words in, once i have all my faculties going.  Right now, i find that the things that work best come in to me: reading, watching documentaries, listening to people.  Going out – writing, art, (God help me) work for clients – those are all taking inordinate amounts of time and energy.  If they can happen at all.  Yesterday i tried, i chained myself to the laptop and got halfway through one project, but then could do no more.  i was making foolish mistakes because my body was crying for rest.

If i am not careful, i will start chastising myself for this – thinking that this idleness is delinquency rather than recuperation. Half of the battle right now is to refrain from being mean to myself for what i perceive are shortfalls and weakness.

My doctor, last Friday, reminded me that i was still in recovery from the surgery.  She asked me to be kind to myself, to take it easy: no heavy lifting, no bending way down, rest as i need it. And i am doing exactly that, even if the frustration of it brings me to tears.

This means i am behind deadline, that the sink is piled with dirty dishes (again), that my heart aches because of all the things i want to do. Even when i am unable, my mind continues to create story and play with painting. Still, every other time i’ve had a major illness or injury, i ran back into the embrace of work, desperate for money but also desperate for the fulfillment and distraction that it brought.  This time, either at the worst or the best time for it, i am actually going to take care of myself.  Today, i will finish that project, and another, but it will be while swaddled in warmth and possibly interspersed with a nap or two…

It has taken days to write this down…

For years, i have struggled with how personal i should allow this blog to get. It is an odd conundrum to have, given my general disposition. In conversation, i have very few boundaries. No personal embarrassment will stop me from making someone laugh.  As a poet, i am a spiritual and emotional exhibitionist. There is very little that i won’t write about, and have a peculiar lack of shame when it comes to flinging my secrets out into the world.  Think of a chimpanzee throwing it’s feces at random passers by, only substitute poems.  In rhyme or blank verse, i will describe any level of transgression or epiphany, love or suffering, without a thought.

If i appall someone with my poetry, after i am done celebrating my aim, i am quick to add: a poem is to a novel what a polaroid picture is to a movie – a tiny snapshot of reality, of Truth (if done well,) but not necessarily something eternal.  Writing can be an exorcism of sorts.  Once the words are down on paper, they do not haunt the heart.  These words may reflect a moment of profound grief or trauma, but that no longer apply to every moment of my existence.  Likewise, much to my shame, that moment of bliss and understanding might have also been swept away with the tide.  So, this temporary nature of the poem has left me feeling like the nakedness of the soul is appropriate.

Only, i have tried to walk a fine line here, in the prose, in this primary blog, between what i want to write about and what i deem appropriate for polite society.

Many people have told me that i already reveal too much and should back off.  Only, this afternoon, while i sit here waiting for glasses, i have no desire to be cagy or polite or wrap a cloak of denial over the situation in which i wallow.  This journey that i will be traveling for the next six months or so will require everything i have – keeping up a facade, or being vague about my problems, will not work.  Or, rather, it will take energy that i do not have to give, so today i will shed my inhibitions and tell you exactly what is going on with me.

Only, now that my defenses lie scattered around me on the floor, i suddenly feel shy. i have noticed that it is cold.  Perhaps i am remembering the loss of yesterday, twenty-four hours martyred to maudlin moaning and cuddling up in bed with animals.

A lot of what plagues my mind i have written about incessantly: a pitiful lack of courage, an over abundance of anxiety bordering on the ridiculous, continuing problems with my health, financial insecurity. These are all still present and strong – although, maybe, i am doing better against the depression/PTSD/anxiety than i thought, because i am still standing. In the parts of this blog focused on my spirituality, i have talked openly about despair and doubt as much as i have communion and joy.   

At least six months go, i reached the level of overwhelm that made coherent thought and action nearly impossible.  Instead of actively swimming through the currents of life, i have been thrashing, choking on the waves and spray, reacting but not able to move in a coordinated and productive manner.  i know this, so i have kept praying and begging and reaching out; my persistence fueled by desperation.  Only, with one tremendous, mind-boggling, life-altering blessing (the discovery that this world is filled with love and kindness) set aside for a moment, the rest of my troubles have continued on undaunted and undiminished.

What has my guts churning today, though, is my health.  i have to get a hysterectomy as my uterus is horribly swollen with tumors (biopsy pending) and even if they are simply fibroids (please! i have been praying ceaselessly on that score) this will be major surgery.  My right leg, because these things happen in groups, has been having problems working.  Indeed, there are times it will not work at all. Thank heavens i had company over Christmas that could move my leg when i was experiencing one of these brown-outs.  Unfortunately, now that company is back home and i am left swatting at my leg in the morning, trying to get it going. Thankfully, my dog, Darwin, seems to have more sense than me and does a laying on of paws to get me started.

At any rate, that too is surgery and my left leg has the same issue but somehow, magically, still works.

The glasses i am waiting for come because my vision has been steadily declining for the past couple of years – while so much of my hair has gone white that i have been turned into a blonde.  My primary concern, though, even before they hysterectomy and the hip surgery and the collapse of my finances (for with these injuries, no wonder my ability to run my small business has been horribly impeded,) is that i am diabetic.  i have to get my blood sugars under control. Three quarters of my problem is that when i am horribly stressed out, my sugars go sky high.  Once the stress abates, A1C gets better. 

But, when will the stress abate?  Sometimes i think that letting my life fall to pieces without a struggle would be less stressful than trying to get myself to change and be strong, fierce and fearless. Surely accepting powerlessness and submitting to the crappy things that have happened like they are some kind of judgment would feel more peaceful than demanding things from life (a living, health) that it seems so unwilling to give.

Yet, of course, here i am, pushing against the wall with all my might and demanding that it magically become a door. One of my friends – for these delightful people have been the awesome blessing that saved my life during the past eight months – keeps syaing that she knows i will be okay because i am the most stubborn cuss she’s met.  Part of me hopes she is right.  However, every time i push forward, doing something that i thought was impossible for me, i feel a quiet wave of pride and a huge inundation of WHAT WAS I THINKING?

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Twenty four hours have passed since i wrote these words.  Glasses have made my world have sharp, clear edges again.  A seminar about selling your work at trade shows has taught me much.  But mid way through the class, i had an epiphany:

my path must be different than that of my classmates.

Simply put, i do not have the health to do major shows yet (or create the stock i would need) – perhaps in the summer or fall, but even then, by not applying for them now i will not be accepted into them.  Moreover, i am still substantially hampered in what art i can make.  So, i will have to forge my own path – taking advice from everywhere i can, gathering inspiration from the stories of artists who can pay their bills – but finding my own way. 

At least, as my heartbeat quickens with that realization, i can take comfort in the fact that i can finally see clearly again.

8-9 January 2015

missing days

It had been my goal to blog every single day remaining in 2015, but i missed two days for no reason other than overwhelm. In eight days, i am going to have an appointment about a hysterectomy and now i’ve discovered there is a serious issue with my hips that has been causing much of my pain walking, sitting, standing and generally moving. i knew i had a problem with my legs, that is what drove me to the doctor because i was desperate with pain and my right leg to stop farting off and not working, but really thought there would be a non-surgical option – “if you just do exercise a, you will get all better.”  Alas, that is not the case. So i will definitely have one, maybe two and possibly even three surgeries this winter.  If it weren’t for friends, i would have fallen into a puddle of self-pity.

Oh, but there have been miracles this holiday season.  For a week, i have help with the chores of life and business, and it has been delightful, but this temporary relief has explained why i struggle so much alone.  Having someone here to see the difficulty i have just standing up and walking much less trying to get serious work done, the pain i am in, my distracted focus, had the unexpected effect of making me understand i can be intensely cruel to myself. Friends have been saying this a lot, commanding me to “Stop insulting my friend this way!” when i go on a tear about how awful or lazy i am. However, it is different when someone sees you 24/7.  So much denial exists when i am alone; i can tell myself that i ought to be able to overcome anything, when i fail it feels like torment.  Looking about the house to see that which i have not finished, those jobs that i cannot manage, i give myself no quarter.  It has only through other, more compassionate eyes, that i can see, ‘Ah, yes, there is a reason for this.’ and ‘Oh, maybe this is not failure so much as a setback.’

In the next few months, i intend to get myself sorted – which, i can’t believe it so i will type it out again, will involve another surgery at least, but probably more than one.  The past twelve months have made me confront the limitations of my body in ways that i don’t particularly enjoy. However, denial has stopped working.  In order to be a fierce, strong woman i have to reclaim some health first.

Still, i cannot complain that much.  This year has been a miracle too. i have learned so much about myself, i have come so far from where i started this journey eight years ago.  The fact that i have gone through this financial and physical crisis without getting self-destructive is remarkable.  However, the biggest lesson needs to come to me in 2016: how to forgive myself for my weakness, how to forgive myself for what i see as failure (by redefining both failure and success?), and most of all, how to regard myself with confidence and treat myself with compassion.

From there, i believe the other things i need – better financial stability, a way to make my art feed me, writing a new story for myself – will fall into place.

As for tonight, the lesson is: i can fuck up and be forgiven. This is really miraculous for me.  Already i had learned that a tremendous amount of physical limitations and emotional chaos could be processed by others and they could still love me, but this kind of subtlety had been suggested but not proven. Yet here it is, proven tonight: i can make thoughtless mistakes, apologize from the heart, and be not only forgiven but still loved.

If another can do that kindness for me, then shouldn’t i aspire to do the same for myself?

doing too much, doing too little

In retrospect, i entered this whole “getting surgery on my shoulder” with a lot of hubris. Most of it was fueled by desperation, my arm was in so much pain it had been rendered useless. A few days before the actual event i had written in my journal that without doubt i would be back to work within a weeks – at the very least writing and drawing and getting my online store up to date. i would be back quickly because of how deeply i grieved over the time lost to the injury over the summer.  i needed to redeem my life, prove myself useful. “Yeah,” i wrote, “No doubt. i will be back before a month is out.”

Predictably, i was thwarted – or rather, i proved to be insane in my expectations.  What i wound up doing, by in large, was crawling into a hole and waiting for friends to gently toss provisions down at me. In-between injuries and spells of terrible health, i forget: pain keeps the brain from working well, healing takes energy that would normally go toward other things.  Fighting the need to rest brings on even greater despair than the pain already stokes.  Sometimes a hole is exactly where one needs to be, to have quiet and stillness and time to sleep and get better.

It has been six weeks since surgery. Because i am wildly motivated to have two working hands, i already have nearly full range of motion in my arm, but i am terribly weak.  The muscles have no endurance.  An hour in the studio yesterday and another today has left my arm sore and completely exhausted. Inside the joint there is a deep, empty ache and the muscles all grumble angrily. Add to that another round of bronchitis-like symptoms that began a week ago, eerily similar to the affliction that leveled me this time last year (those same friends were begging me for a trip to the hospital during their visits this weekend), and i have had even more days added to this long pause when living feels like it is on hiatus.

i recognize that right now i am a fragile flower. Anything unexpected or extreme will make me wilt and lose my petals. i can do some work – clients’ projects slowly come back up to date, i wrote about a dozen poems today, i am rebuilding the world of my novel in my mind – but physical activity remains limited.  Each time i do a little too much, i fall back down on my generous behind.  i am seeking balance in a body whose needs are shifting wildly from second to second. This can be a dance, trying to maximize what i do and not destroy myself in the process.  i cannot claim success, but i am truly understanding how much of my self esteem still hinges on my ability to make art. Down to my soul, i have learned that the reflexive hatred i feel for myself when i am unable to work is not just useless, but corrosive. This is the habit i cannot let take hold.

For now, i have to be aware of where i am inside myself.  i have to be kind and gentle, dismantling the nagging demand that i justify my existence through ceaseless motion and effort. That way, i can treasure the things i manage to get done – like verse, and drawing, and just making it through another day.

cleaned out

IMG_3946Not quite three weeks ago, i went through surgery to get my left arm working again. My entire shoulder had to be cleaned out. The pain since June had been increasingly crippling, leaving a path of destruction through my attention span, my memory, my strength, my mood and my endurance. A large number of blogs charted this descent, long before i realized how much the disability was effecting me. It had been months since i could throw without tears. Sculpting proved to be too much. The novels i’d been writing (a series, going forward in an odd way but still moving at a delightful and brisk pace) suddenly stalled, my mind unable to hold their complexity.  The characters continued to swim in my imagination, but their movement was languid and impotent; i could not fix them to the page without some focus.

Already, those problems have begun to shift.  Almost immediately after surgery, the pain was already less than it had been before the repair.  Today, i was able to drive and function like i have not been able to contemplate for months. As i made my way home from several errands in Bangor, i was singing with joy.

Of course, i still have a lot of healing left to do.  My attention span still wanders more than normal.  The fatigue can be overwhelming, even after gentle activity.  My other health issues have not been solved.  Also, a lot of tasks are still quite difficult, but i am getting better at them all the time. (Case in point: tying shoes.IMG_3979 Who would have thought the shoulder was involved in that? i figured a back-clasped bra would be next to impossible, but extending down or reaching out if i’ve raised my foot to a chair, turned out to be unexpected pain.) Every sign of improvement leaves me overjoyed. Indeed, my personal hygiene after using the bathroom has already reached my pre-surgery standards, for which there is endless rejoicing.

It is the simple pleasures, really.

My friends have come through for me with such shocking kindness that i have been unable to articulate my full gratitude even in prayer.  i have spent so much time writing about loneliness and isolation and feeling like the other; this experience provided testimony to the miracle of friendship.  People sat with me the first day after surgery; a steady stream of food and gifts made their way to my doorstep; calls, messages and email came in a small flood to check to see if i was ok.

There were nights alone, when i held a small pity parties for myself because i was alone, partially immobilized and in blistering pain, but then i realized, even if i were married or living with someone, the impulse to whine would remain.  Pain itself was the cause of the wallowing.

Last week, i pushed myself too far.  This past weekend, i did very little but sleep and draw.

A large stack of drawings became evidence of that first great swelling of creativity. This is the art of recuperation.  i drew each on mat board, heavy enough to stay in place.  My left arm rested while my right hand moved the pen.  Until yesterday, i had not the strength to word.  But, three poems, a few cover letters, a further revamped resume and this blog have encouraged me.  The writing has started to creep back.  i have had the image of a character walking through my imagination all day today, asking me to finish their story.  He’d just met someone, after all, i think he wants to know where that relationship is going.  With every bit of art, i feel like i am coming  back to life.

It is the simple pleasures, the patient kindness of friends, the sense of hope that comes over me when i make art – even when it’s small and frivolous.  Love has been pouring through my life, for a lot longer than i realized.  Like the insidious effect of pain, love has been there, too, on the edges, moving through me, changing everything without my conscious mind realizing it.  My life is rich with friends, with fellow artists, with innumerable blessings. The outpouring of kindness had left me unsettled.  Honestly, i knew i would get help but had no idea how much would flow my way.

After nearly three weeks of addled introspection, i realized with shock that too many awesome things had been dismissed or missed because i was too stuck in my old stories.

First there was the story of the lonely, frightened child. Then the awkward teen who had no idea what to do with people and no confidence in herself. Then, the woman who had weathered first debilitating illness and then the rejection and pain of a divorce.  After that, the long loneliness.  All of it is laid bare in this blog. i have written post after post about feeling like the other, feeling alone, feeling isolated.

Well, when i was in need, people came.  Those stories, while potent, were not the absolute truth of my life.

So what replaces otherness?  What stands up in the space where loss once loomed?

i looked at myself through another’s eyes and saw someone wildly blessed with creativity and stubbornness. This spell of injury and recovery happened when i was at my lowest, when i felt like everything had completely fallen apart, and yet, here i was sitting in a pile of my own drool, just a day and a half after surgery, drawing.  i drew because letter could not follow letter in that stupor. Nearly every day, i drew another few pieces. Then this weekend, the engine of art started roaring back to life, filling all my senses. It happened without force or effort, proving again that art is a quiet compulsion leaking from my fingertips.

When i challenged myself for a new story the one that presented itself was a deep truth: i am an artist, who can’t seem to surrender her art. Perhaps i am too mad.  Maybe i am simply too obstinate.  Either way, i keep melting into image and story.  Despite other jobs, and injury, and illness, and discouragement, and poverty, and failure – i have continued making art. Thin lines of ink have woven themselves through my healing.

i am so ridiculously grateful.

the dam bursts and the water flows

For over a week, my body tackled my aspirations and strangled them in a choke-hold until we all lost consciousness.

sleeper-300x237For days and days on end, i could not manage to be a human being. i whined enough even my animals wanted me to quiet down. For two days, migraine aura messed up my eyes enough i couldn’t see, and the headache itself kept me from thinking clearly. Not one system in my body was behaving.  i was a lump of wretchedness, dissolving into sorrow.

And thus i was every moment when i wasn’t at galleries, and too many moments when i was sitting.  This was not my best week for engaging customer service.

But today, i can see! i can think! i can move! Last night, during those first hints that things were getting better, i was able to start getting my house in order, taking control of the kitchen for the first time in a long time.  Once more i reminded myself that if i can work, i do.

This is the closest i get to manic, i suppose. After so many days of being derailed, to be able to function is pure joy. i was singing this morning, because i had the energy to do it. Even if i fail today, even if i get nothing useful done, at the very least i have managed to exist with contentment and zeal.

i feel like the dam has burst.

i am trying to be fearless.  Mostly, i am failing.  i am having surgery on my shoulder next week, and i am terrified not of going under the knife, but of a long recovery at home alone.  i am dissolving in debt, still working with someone trying to desperately avoid bankruptcy, but each day that this financial dissolution couples with increasing physical disability leaves me shaking harder from fear.  To be honest, i have not discovered a mechanism for complete boldness.  Some gear or another in my bravery engine keeps getting stuck.  Instead of fluid courage, there is a lot of sputtering, stopping and starting, and uneven progress.

Actually, if you’re reading this blog, you already know that.

However, if i am totally honest, i can see other signs of improvement and change.  i got a nice rejection for a book i finished in July, which was evidence of courage because i actually sent in a submission. So, i can make the most of a wild spasm of hope. The strength of will it took to get here, today, to this gallery, despite the weariness and sorrow and illness of the past week proves that i have some steadfastness.  And, most importantly, i have finally managed to set up two events to start purging my belongings so i can move:

https://www.facebook.com/events/1709075902637790/

https://www.facebook.com/events/599245560214457/

They will be this weekend, concurrent with the Maine Craft Weekend.

This morning, i spent a long time awash in gratitude, simultaneously praying that this sense of joy and strength can maintain itself until surgery on the 7th.  i am getting everything lined up: laundry done, cooking done in advance, cleaning as much as i can, making sure my downstairs bathroom will be useful to the one-armed gimp that i will be.

i need strength and joy right now.  And, thankfully, today i have captured the delightful echoes of both.