Tag: survival

naked truth

For weeks, i have searched for a way to talk about this through fiction, because i did not want to dwell upon my personal experience more than i already have.  However, telling the truth is what i do best.  And, to be honest, part of the problem is that i do not want to ask for help.  i do not want to talk about what i cannot do alone.

The first person to mention the near impossibility of the situation i was creating for myself was my primary care doctor, just after my divorce.  “Without doubt, you qualify,” she assured me, “with the PTSD alone.” The physical problems – asthma, thyroid disease, diabetes, fibromyalgia (or whatever that diagnosis would be now), the back and hip problems – they would all be gravy.  She all but begged me to accept that I needed to apply for Social Security Disability.

Only, the statement strung me up between two different agonies.  i need to work, for i cannot quite give myself quarter for any suffering – mental, emotional, or physical – but simultaneously, i feel like i am dying by inches, pushing myself too hard.

Regardless of my bull-headed stubbornness, i am drowning financially.  Even though i am working as hard as body and mind are able, i quite literally cannot make ends meet.

This is not a new story, unfortunately.  Nor is it unique to myself.

Over $20,000 of medical debt hangs around my neck like a noose.  This is the aggregate due from years of issues: two major surgeries, a hospitalization, three trips to the ER, two ambulance rides, not to mention every deductible, copay, and uncovered medication. Add to that the small business loan that i got when things were going ridiculously well, that now feels like cement boots.  This past month, in order to pay them, even partially, i had to forgo food, gas money and put off the mortgage for about two weeks. If you want to make me cry, lets talk mortgages.  i finally got it refinanced, but now, eight months later, i will be two weeks late.  The angry letters have already started. Not only am i at a loss for utilities and the cats’ vet bills, i have no idea how to buy the medicines i need to treat the aforementioned diabetes, thyroid disease and despair.

Last night, i wept because the list of things i have bought recently would not stop going through my mind.  i purchased a lawnmower because the grass was as high as my nipples.  My car needed new breaks, because stopping can be a good thing. Then i got $12 of new shoes so that I would have something other than the $5 flip flops to wear to work.  For my birthday, i bought a $28 pair of wireless headphone so my constant need for music would not drive my new tenants to madness.  When i got a promotion at work, two days after my birthday, i celebrated by going out to eat.  Let me tell you, guilt is a terrible seasoning.

For a solid year, i have focused on the regular job that makes reliable money, but its paychecks cover the mortgage, the small business loan and maybe my car payments.  All other responsibilities make me seem like a deadbeat.  Only by the time i am done working this job and making some art, i am exhausted beyond all measure.  Things like selling art have languished.  Too many paintings and drawings are collecting dust.

When i first heard the word foreclosure – only to find out that the mortgage company with whom i had been working for months had sold my mortgage – i reached out to a mortgage specialist.  It was my first day in the studio after having shoulder surgery, and i was still unable to bend because i was awaiting a hysterectomy.  The pain i faced was intense.

“You have done everything right,”  he said gently, “I am looking at how you paid everything off until the medical bills began to pile up…”

i am still digging out.  This month, i am short.  Something will not be paid and i have no clue how i will get the cats’ vetted, my medication purchased or food bought.  Meanwhile, i continue to get messages from clients who have not paid me, asking me if these long standing health issues have vanished so that i can do more work for free. This perception that art or design is not work worthy of being paid for, or that the artist is not worthy of being recompensed for their effort, devastates.  If you value what i do, if you like my art, then this is the time to let me know.

A $100 would pay a bill.  After that, it would be a war within my heart over feeding and maintaining my animals and myself and paying other bills.  The past three years have been, quite literally, hand to mouth.  Desperation has made me put art up for sale again, despite the exhaustion and overwhelm, and with that i hope to at least get the cats to the vet.

However, i bleed over my financial failings.  To a large degree, it feels like i bet on myself and lost – but i knew before i started working as an artist professionally that my health was compromised. Only the call to make art is something fundamental to me, it cannot be denied.  i feel shame that i fell into such disability that i was unable to continue my business’ growth. This fuels my determination to make good on every debt.  Even if i am still making tiny installments when i am ninety, i will pay everyone, even the ones to whom repayment has not begun.  i tell myself – ceaselessly, hoping the repetition will hypnotize me into believing it is true – that things will get better.

Still, i never forget, i am the person who is reviled by those who talk about the poor like we are pariahs.  i have been utterly undone – more than once – because if ill health.  Even now, living paycheck to paycheck, the struggle to maintain this level of activity is punitive. Daily i am faced with the choice between taking care of my health and fulfilling the responsibilities placed upon me. Even making art or writing a poem comes at a cost, wearing me down further.

How else can i live, though?

Being able to work feels like a privilege – and one too many have thought i could not manage.  My friends who are on disability are much braver than i am, able to move down a path i could not.  Unfortunately, i know, someday i may have to follow them despite my best efforts, but for now i am doing every dance i can to keep myself from that excruciating choice.

Whether i like it or not, i have to spend money on food, gas, car and house repair and medicine.  Therefore, i have to burn the candle at every possible point, throwing my work out into this world, no matter how exhausted i am.  Even if i were content to make art in a vacuum, which i am not, i am not going to be able to survive without more income.

So, here i am.

For once i am being utterly transparent about my movies and situation: i need your help if i am going to keep going as a human being, much less as an artist.  Your support will keep my animals and me alive.  If you buy a painting, or a drawing, it clears space for another to come into being.

And, if you are in the same position i am financially, i will be grateful if all you do is share this story, spread word about my art, and use both to build compassion for those of who us toil on fulfilling our dreams and who work our hearts out to live on the razor’s edge between triumph and dissolution.

 

###

 

For a few hours yesterday, i published this blog.  However, i woke up after a night of howling nightmares and put it back into draft mode. The dreams kept going back and forth over the same ground – my subconscious pacing – obsessed with the one thing that i had forgotten to mention.  This blog talks about how troubles that i face came to be and how i have to ground my hopes in art again which can only be done with your help. Talking about the naked truth of my current situation made me feel exposed, more than all the poetry that i have written combined.  Yet the thing that my dreaming kept reminding me of was that i should not be alive.  During the past few years of struggle with agony and illness, i have tried to kill myself twice.  Haunting despair crumbled my heart more than i could describe. It has been because of friendships, unexpected blessings and hard work that i am still here.  i have a job that gets me most of the way to solvency and for now, my health lets me manage it, even if the margin is narrow at times.  i have friends that are unbelievably good and slowly i am coming to terms with who i am at this moment, and beginning to appreciate this hot mess of being.

So, yes, I am asking for help, for understanding, for a sense that i am not howling into the darkness – but i need to leave this writing by telling you that i am so grateful to have made it this far.

the blessing of dreams

i initiated contact.

As with all the false starts and suffering of my life, i am the root cause.  The blame cannot be pushed aside.

Because i wanted to check in, i sent him the message, asking how he was.  What i did not expect was to be confronted by a video of him with a woman i did not recognize barely two weeks after he had left my life.

While i cannot pretend to know the circumstances, i am also glad he has moved on.  The heart demands both: to be celebrating his happiness – that this transition from a place where he felt so alienated to one where he is among family and friends has gone smoothly and well – in addition to the vicious, visceral grief over this loss in my life.

How i love him.

The intensity of my longing left me blind for so many months; when my eyes opened, i had no other choice.  i could not demand from him what he could not give and i could not keep asking myself to sacrifice what i needed.

That sounds so civilized doesn’t it?  Like i am mature and kind.

So why does it feel like glass moves through my arteries to settle down in my toes and fill my feet?  Why does this piercing wail echo within my skin?

i lament whatever it is that seems to make me intolerable. Doubt and fear scream through me. Perhaps i simply cannot be loved?  Am i doomed to lose my friends? Thinking of the tenants upstairs right now fills me with an irrational sense of dread. How did they manage to abide my presence tonight? My partner would have rolled his eyes and been angry at me for overextending. Of course, he would have been able to soothe the physical distress away – but it would have been a chore for him. There would have been sighing and a stern reminder of my transgression. Instead of just dissolving in insecurity, i also would have been corroded by guilt.

They seem to get along with me now but what will i do or say that will drive them away? Will i start coming home to people who would rather avoid me, again? With all the storytelling i have been doing, could i even blame them? What in specific will spark the transformation? Will it be that one joke too much?  That inappropriate comment?  The wrong name or pronoun given voice by the scattered thoughts escaping my mouth? i cannot let my mind wander to the social stresses of work, or i will be trapped in this despair forever.

If i were not this useless person tonight, i would have been praying more fervently, a disciplined outreach to the Divine.  Only, when i am in this kind of state, i feel irredeemable. It does not matter on which sex or shading my anthropomorphism fixates, the Deity could not possibly look upon me with compassion, much less love. i am rapidly descending into the place where all i can articulate is my own worthlessness.  My lover could not love me back. Our entire relationship, in so many ways, boiled down to the rolled eyes of exasperation. My body is unbelievably angry with me.  i am eating like shit, making the whole body hating me conundrum worse. But for the love of heaven, i can only fight so many battles at one time. i am drowning. Even the good things that are happening barely penetrate this veil of suffering.

More than nearly anything, i don’t want to be writing this.  i want to tell you stories of love that work out – that one magical person who can look at me with devotion and joy.  i might wistfully wonder what it would have been like if i could have found that kind of love when i was young. My prodigious imagination cannot quite grasp what it must feel like to look into your beloved’s eyes at nineteen and be certain that you will still be with that person when you are ninety seven.  Or to be that ninety seven year old, still drunk with gratitude for the familiar soul still vibrant inside those same eyes.  What would i have been if i had been cherished?  Would i be on this path, flanked by cement barriers that keep me from deviating, that demands i learn how to warm myself in this vacuum of space, so far from the sun?

While i can still feel my skin, i can tell you it is soft.  The undulations of the body, like waves of the sea, can move with pleasure as much as they constrict with pain.  The harder walking has become, the more i cherish the joys of the senses.  i live for that moment when i am quiet and still, when the pulse in my back becomes a disembodied throb, because i am living within the fingertips hitting the keys or the music pouring through me.

i want to tell you stories about the dreams that flow through my sleep; i want to talk about philosophy and past lives and those moments of connection to the divine. Let me hear you laugh!  Laughter would utterly transform this night of agony.  Help me expand my experience past this skin, so that i can gain courage from the rest of creation.

Only, no one is here to help me shoulder my burdens.

You are a blank page of paper.

All i have to keep me sane – the only form of love available to me – resides in these words.  If i look into my heart, all i will hear is howling.  Somehow, these letters give me gifts that i cannot bestow to myself otherwise.  If word after word tumble out long enough, i start to believe in possibility and joy again.

i cry out to story, the truest of lovers: carry me away from heartache and this terrible throbbing in the back of my head, that travels down my spine until it hits that bubbling pool of lava tucked inside my vertebrae, somewhere behind the belly button that i cannot feel any longer.  Lift me up like i were an infant and hold me fast so that the safety of the embrace overrides all the weeping.

i wonder to whom i write those words.  The divine?  A character in one of my novels? The miracle that is language?

So many people have told me that they are proud of me for breaking up with my lover, just as they were proud of me for pushing aside my heart-song to get a job.  They point to all the ways my life could spring forward now, the freedom that i have gained, that i have proved i can make decisions for myself, the incredible opportunities that, of course, they see on the horizon.

Tonight, i am not proud.  Indeed, i am humbled almost to the point of dissolution.  If i thought it would do any good, i would cry out like Job, bemoaning my fate and demanding answers.  Only, i cannot forget: i am the alpha and omega of my suffering.  i reached out to this man so beloved today and got my just reward – the realization of how far i have to go before i could begin to entertain the possibility of being with someone else.  i chose to give my heart to everyone who broke it.  My ignorance and my cowardice do not minimize my responsibility. i chose to be an artist.  i chose to believe that i am meant to write in poem and story. i chose to get a job rather than take other roads.  Even if i were to abandon everything and fly away, i cannot escape my failings as a human being.

My body has betrayed my ambition, or vice versa, but either way i am in an unenviable position, torn between what must be done and these punitive limits to movement.  The journey that begins when i rise from bed and ends when i can tuck myself back in comes at a cost. In the shower i beg for strength to get through the day; in the darkness, head against cool sheets, i weep from the stress of pain. While i can compartmentalize what is going on in my heart and soul so that i can get through the day at work, i am running my reserves so low that i often cannot even write when i get home. Exhaustion becomes a form of impotency.

Once the pain builds to a crescendo like tonight, the walls of my compartments dissolve.  If i am lucky, i can stop the destruction through art. On the nights when i am too weary to do so, i have to soundlessly endure, making the ability to create Gratitude Prime. The tragedy of this is that i also lack the courage (although tonight it feels like bone crumbling fatigue gets mistaken for fear) to release the offspring of my spirit – whether it be painting or poem or prose – into the world.  Artistic paralysis threatens to become complete.

i wish Love could hold me, so that the warmth of belonging flows into me, and speak the magic words that would make me believe in my mission as a poet, as a writer, as an artist again.  Oh, to believe that this was still my purpose, to believe i have some form of sanction for this calling, this folly, whether it makes money or not.  Spirit, i cry out for miracles that i have already betrayed.  My heart slams around in my chest, its beats defying rhythm, as i think about how deeply i have betrayed my greatest blessings.  So many others would have removed this vocation from my hands, because they would have seen it as an act of mercy.

“Please, stop torturing yourself.”

“We are tired of seeing you bleed with unrequited ambition.”

And yet, here i am.  The rest of me prays for relief while these fingers keep typing.  If i have anything at all, even the most depleted vapors of inspiration, i will hide here.  That way i don’t have to talk any more about this outrageous suffering.

Let me tell you about the characters in my book that just dance through their pages.  They get to be the outlet for grace my limbs cannot manifest.  Hear about the universes i have created – they are rich and weird and have kept me safe inside the sanctuary of distraction and story.  Give me a way to write about the chaos of our times, how everything has turned sideways and is no longer recognizable to me.  Let’s construct lyrical poems about all the things that are still good.

To keep from returning to my complaints, i can go on about how when i am too far gone for complicated plots, i try to dream like a baby would. Strip the pretense of sophistication away.  Remember helplessness.  i can be held in arms, loved and cherished despite not having coordinated limbs.  Listening to the heartbeat of the one so steadfast and strong, i would be drowning in the most simple of loves.  You love me, i love you, there are no strings to that, no demands.  i can feel the arms around me, i can hear that steady rhythm, i can remember what absolute trust that kind of love requires.

That, i swell with ecstasy at the truth of this epiphany, is how i think about the Mother-side of God. i can be safe within those arms, cheek pressed against that warm chest.  It is the heartbeat of creation i hear. i dissolve in the golden light of belonging.

Then i would dispense with poetry for the night, as it requires me to live too deeply in the body.

i do not want to write about that.

Tell me what it feels like within your soul to love and i will confess to you that the hope and strength and a ridiculous capacity to muddle through actually spring from my ability to love not only strangers, but people who have hurt me or failed me or just turned out to be assholes.  In an ecstasy of exhibitionist conversation, i will keep confessing that this resilience and love all feel like madness during nights like this one.  i will weep over how it feels like people are growing more selfish, colder, turning brittle in their certainty.  But with my next breath, i gather up my broken pieces and tell you that miracles can happen and it all might change on a dime. Transformation can sweep up this sad, round little body, all the people i know and love, all those i work with, all that travel these roads i do, everyone in this state, each soul in the country and the world.  Just as i cannot point to one thing and say, This was the moment it all went wrong, i would not be able to say This is the moment everything got better. The change would be too fundamental to remember how it was before.

That uncertainty leaves me smiling.  Indeed it makes the green electric wail screaming up and down my spine seem like a celebration of life. i hurt, ergo i live.  Not to mention, things are changing even within wretched muscle and nerve.  i have been prone for over an hour and i have begun to feel the screaming in my legs finally make it through the lava in my back to my brain.  That settled glass is now sharp and tearing into my feet.  Surely that is a good sign, even if it keeps me from sleeping and brings on fresh tears.

It gives me time to close my eyes and reach out into the worlds that live within my imagination.  So many voices clamor to be given birth.  Stories float by like gifts to be unwrapped.

Perhaps i am more like Job than i thought. During this lifetime, i have lost my family, my husband, the partner that i still ache for, the chance to have children, too many friends, and all delusions that i am anything other than a hot mess.  However, inside the realm of fantasy and dream, i have a mother and a father and, depending on which story i choose, a lover or a husband or a breathtaking contentment in solitude.  There i can dance and sing and run like the wind.  If words fail, i can paint the most amazing pieces against the canvas of my eyelids.  The hands of dreams can sculpt in a way no manual digits could. This is the most intimate art, the sublime shards of blessing, which rises up within me for no reason other than to get me through.

  Job got his health back, his wealth back, a new wife, and better children to replace those he had lost – although i imagine the way it was all taken away left a permanent scar.  Either way, God’s favor shone on him again because his faith never wavered.

While these words are wet with tears, i cannot hurl my rage at the Divine.  i am too aware of my culpability, my free will to screw up.  And, before, i have had miracles but lacked the internal fortitude to build my future upon them.  So, i have to look at these lines, begun in a moment of excruciating rawness, as the blessing.  They are enough for they have transformed me from a babbling, self-pitying fool into an inert pile of gratitude.

i am learning more every day how to give what i have lost to myself.  Granted, the configurations of love will not be the typical ones, certain opportunities have been lost. If the scars never go away, i have at least learned how to embrace them. Joy, depth of experience and appreciation for every breath weave their way through my days, even if they have to move underneath a veil of darkness.  Letters drop like rain, eventually becoming an ocean of comforts that will be unique to this particular, peculiar experiment in humanity.

All i need to do is make art a rope to pull me out of my suffering, give thanks for what i have been given, and release myself into dreams.

poem: the gift of strength

As the sun rose
over a sea of discontent,
the only comforting thought
was that death
might come soon.

i hung my head,
surrendering
to this dejection.

Once i stopped resisting,
i drowned within
the darkest waters
of grief and loss.

Then, the miracles began.

Kindness,
love,
help,
kept flowing to me
from the universe
from those i love.

Over an hour
life turned around.
My arms flung themselves open
rather than hold fast
the doors of my life
against catastrophe.

i had been given
the strength
to keep living.

5 may 2016

a month

13411862_10208363446235263_2117676587360267764_oIt has been a just over four weeks since everything changed.

Honestly the transformation started nearly eighteen months ago, sped up considerably this time last year, but the past four weeks have accelerated the process to the speed of light.

As i write, i have a job, one that requires 40 hours a week and will pay me regularly, and for that i am on my knees with gratitude. The stress of trying to make it solely through art, alone, with my health suffering for so long, was intolerable. i was breaking down.  It made my art – especially my writing – suffer.

For most of this job search, i was afraid on so many different levels.  i am an artist, an acquired taste, a round ball of strange.  To find a place that can tolerate all that – and the terrible staggering awkwardness that my body often adopts instead of graceful movement – is fantastic.

But this is a blog about the business of art.  And, thankfully, that business continues.  In one month, i have written (and typed in) a notebook full of poetry, done more drawings that i can remember, finished writing a novel, and begun working on a short story that amuses me more than i can express.  i have never written from the POV of a planet before.

Today, as i gallery sit in Southwest Harbor, i feel more centered in my calling than i have since Darwin the dog died.  Going into my studio has been hard, and something for which i have had very little time.  13483087_10208363947087784_3077929633202552197_oAs soon as i could throw again after surgery, my kiln died, so the pottery side of everything has been stalled rather horribly.  i await a paycheck or art sales to get new elements and relays, and then, i will be back up and running after this year and a half long stream of catastrophe.

i imagine i will release a deep sigh as that first kiln begins to click and heat up.  This will be the physical proof of my breaking out of this confining suffering and into a new, (glorious!) stage of life.

Indeed, it gets even better: sometime in early August, i will be teaming up with another artist and potter. He is phenomenally gifted and i am truly honored he wants to work with me. This is an endless source of personal delight, but will alter the flow of my life (and creativity) again.  This change could not be more welcome; it will be wonderful to have the studio being used more frequently. i cannot wait to see what art pours out of its doors.

Honestly, i have begun to realize that this recent journey through the darkness has given me wonderful gifts.  Somewhere underneath all the poetry and daydreams, there lies a core of tempered steel.  It can flex and move without breaking. As long as i remember that this resilience resides inside my core, especially during moments of overwhelm and despair, i think i will be able to survive.13490800_10208368963573193_3510292570587586590_o

Also, i needed to prove to myself, and maybe to the source from which my art flows, that i can actually do the hard work of life.  i have been scared and anxious for so long – to have fate force me up into a standing position, to demand such sacrifice from me, was deeply uncomfortable. Yet, i am standing.  i am slowly, haltingly, moving forward as an artist and as a woman.

Running this business for so long, alone, had left my confidence gutted.  i did not have all the skills that i needed to be successful.  This is not a whine, this is simple truth. i have grown too tired of self-recrimination to give myself a hard time over this anymore.  We all have our abilities, our talents, and i cannot keep hating the fact that there are aspects to running a business – especially finances and marketing – to which i am not equal.

Also, perhaps, i have grown a bit wiser – not many people can survive flawlessly alone.  Why would i think that i am any different?  The condition of lonely solitude had gone on for so long, i forgot that i could reach out and ask for help.  Now, i know i can.  There will be hands to catch me.

So, today, i am simply grateful. i had a wonderful dog, i have had all these years where i was married to making art.  My body is tired but functioning; my mind, likewise.  And here i am, once more, handing poetry and art to you in my open hands.

 

 

poem: The Big Girl Pants

Not only were
the Big Girl Pants
chafing
obviously,
they were not effective.

So, i burned them –

along with every deluded thought
that i can get through
this awful crisis
alone.

In twenty hours
it will have been eight years
since he broke my life apart.

In the intervening time
i have ridden a wild roller-coaster
between loss and survival,
crumbling over and over
in anxiety and fear,
only to recover somehow
and find a way to move again.

My scars were visible
no matter how i smiled,
showing through all my clothes,
turning up
unbidden
in my art.

Today, the duality,
the paradox,
between the two beings
sharing the shell of my skin –
the artist who laughs,
jokes,
feels so blissfully alive
in the flow,
and the one who
is so distracted
broken,
afraid,
disjointed
and impractical –
shouts at me so loudly
it causes physical pain.

If i act as though i loathe myself,
i am lying;
if i act as if i love myself,
i am lying.
Neither extreme is truth.

The first testifies
to the worst parts of me,
the shaking shadow of a person
who cannot help but believe
the most loathsome things
that has ever been said
about me.
The second
gives voice
to a joy
that seems indestructible.

In various moments,
both have validity.
Neither aspect of me
can survive on is own.

One would blindly go on,
making art,
ignoring all the world
for such passion;
the other would destroy
my soul
rather than
accept
i am worth
supporting or loving.

Without your help
i will fall into utter ruin,
weakness or art
slamming me hard
against the rocks
until i break into pieces
too small to reconstruct.

The Big Girl Pants
did not work,
nor the education,
nor the ambition,
nor the self-hatred,
nor the vicious punishment

It leaves me exhausted.

Since being an adult
is a failed experiment,
all that is open to me
right now
is to think
of the little child
who was so lost,
marooned in this life
and and the things
that always saved her –
faith that help would come;
complete, awesome gratitude
for even the smallest acts of mercy;
unwavering dreams that gave her rope
when she was falling
so she even when she hit the ground
she was never totally destroyed;
and the foolish, unconquerable
ability to love,
even those who were cruelest,
opening her arms
at the first breath of kindness.

She made no plans,
she suffered but she always
found in her dreams
what she needed
to heal from the injuries
of temporary surrender.
Her love for life was enough
to keep her going,
waiting
for that next moment to pray,
that next small miracle
that would save her
for another few hours.

Screw being a grownup.
Let me have the faith
of that suffering child.
this belief in limitless possibility.
i can really do worse tonight.

8 december 2015

poem: the artist’s prayer

Please.
Help me.

i reach out,
my hands grasping
for something
to change
all this stress
and fear
and crushing anxiety
into a solution,
something actionable,
a clear path
toward
temporal salvation.

But all that comes,
filling my hands
to overflowing
like a tap
turned full force,
is art.

So much so,
i could work
every waking moment,
rushing
from pen
to easel
to wheel
to computer
and still not bring it all
into being.

Forget cleaning the house.

All deviations
from this purpose,
from my bliss,
bring on vague pain.
The more i labor
at cross-purposes
to my calling,
the worse it hurts.
Discomfort grows
like mold
until it takes over
everything,
becoming
howling,
dangerous
despair.

So, on my knees,
i pray.
Tears in my eyes,
i beg.
With all the blood
in my veins,
i beat out
supplication:

Help me.
Guide me.
Save me,
for i am so mad
with passion and dream
that i will keep walking,
moving forward,
undeterred
by this glorious
catastrophe.

22 november 2015

right on the edge

For weeks, i have been having profound issues physically. Even my ability to produce art, beyond sporadically writing poetry and fiction, has completely stalled. i lost most of the week before last, taking four sick days. For a while, i rallied, although after three days of shuffling through my obligations, things took a troubling turn. i went to the emergency room on Tuesday evening and got home fairly late Wednesday, without any joy.  Everything between now and then has been a blur of misery.

i have been struggling in the most profound way. The smallest things cause tears to stream down my face.  The world keeps spinning on me.  Food has become the enemy, all of it digestible only with intense suffering and pain. Usually, i cope very well with pain – working around it – but this is different.  i am graceless, frustrated, constantly on the edge of cognitive overload.

IMG_2380
poor Martin

i could not even let my cat, Martin, cuddle (he is always starved for love) – the physical contact made the pain one whisker more than i could bear.  Eventually, he figured it out and started sitting beside me, cautiously creeping closer and closer, until i was in a good enough place for him to curl up close and get pets and scritches.  Thankfully, Roxi and Darwin are more self-sufficient, content to sit nearby and rest.

The worst part of this has been how it debilitates me emotionally.  My issues with anxiety get augmented wildly by this level of exhaustion and pain.  Chronic illness can lead to feelings of hopelessness, powerlessness, but this has been a much stronger reaction than usual. i keep getting jumped, every phone call, each time someone knocks at the door, each time the dog barks like he announces the apocalypse, i nearly come out of my skin. i freeze and shudder and cry. There are a few really unflattering anecdotes i could share about hiding until the unexpected passed – and i acknowledge the irrationality of it. The fear is useless and misplaced.  However, this knowledge doesn’t make any difference. Indeed, the feeling of anxiety was so overwhelming and acute that i unplugged the house line for three days, knowing that people could text or leave a message on my cell (the ringer was set to vibrate) if it was urgent. The boweddown_11x14mail piled up, because i could not get to the box, either physically or emotionally.

Today, i was treading water slightly better, and predictably life felt a little more possible, a little less terrifying.  However, no illusion dwells inside my heart.  As i write, i have expended what energy i have, dinner is at war with my gastrointestinal system, and i can feel the anxiety ratcheting up.  Useless worries crowd my mind.  i try so hard to redirect myself into gratitude – this is a whole meditation/prayer i use to get through, focusing on whatever i can find to be grateful for inside even the worst present – but for now, i am a mouse and my fears are a cat.

Still, i am surviving. i am working to make bloodyminded stubbornness a blessing. All i can do is focus on tiny bits of work before i completely lose myself to sleep and pain.  In tiny, baby steps, i am making progress.  As you can see my website and online store are back up and running, i have edited the books i’ve completed this past month, and i continue to write the one that has its hands wrapped around my heart.  And if i remind myself of these tiny steps forward, maybe the rest of the hulking mountain of problems and fears will seem less intimidating.

strong women

doodle 8 altbFor the past two weeks, I have been lucky to have many conversations with strong women.  They have survived – no, they have transcended – all manner of difficulty and radiate their light into the world. They have taught me the proper way to say “F#$k off,” given me lessons in resilience, bestowed some marvelous advice on getting my business out of the ICU, if not off life support completely.  They have listened to me patiently and made me more human through their compassion.

They are my role models, although a couple are younger than I am.

Tonight, they have been on my mind.  I am over-tired and over-pained.  Once I get to a certain stage of overwhelm and fatigue, I could see very little redeeming in myself.  This is a recurrent problem when I get to this physical state – but my familiarity with this madness doesn’t keep it from manifesting.  I mutter insults to my reflection without even being conscious of it.  In this state, every bit of my art looks ugly and useless.  I know that it is not rational, that it is a a product of my body’s pain and my emotional agitation.  While not every piece is a masterwork, for sure,  in the back of my mind I know that tomorrow they will be seen with different eyes.  Some might even look beautiful again.  For now, though, I dwell in the realm of the uglies.

As I grumble and whine, I think of these strong women.  I admire how they move through the world with such grace.  How, when they need to, they can set limits with every person they meet, the universe itself, and not mess up their hair.   That is a miracle to me, when I am too often in a shambles.insomniac face

I have been struggling to keep my head above water.  My thrashing has felt undignified and ridiculous.  So, as I sit here tonight, settling down after a very long day, I think of these strong women and tell myself to be more like them.  Fierce.  Confident.  Intelligent and generous.

Although, at this rate, major psychological changes will probably have to wait until the morning.